Hi! As every body knows, the song Ronan, goes for a little boy who died from cancer, he was 4 years old when he died.
Here is the story:
Ronan Sean Thompson was born May 12, 2007. He was the little brother to darling twin boys, Liam and Quinn. From the moment Ronan was born, we knew that he was the missing piece to our family puzzle. He completed us. We were amazed and in awe of this spicy little spirit who took over our world. We spent the next 3 years in total bliss, and were so thankful for this little guy who constantly made us laugh and love harder than we had ever done before. Every single day with Ronan was a blessing.
Here is the story:
Ronan Sean Thompson was born May 12, 2007. He was the little brother to darling twin boys, Liam and Quinn. From the moment Ronan was born, we knew that he was the missing piece to our family puzzle. He completed us. We were amazed and in awe of this spicy little spirit who took over our world. We spent the next 3 years in total bliss, and were so thankful for this little guy who constantly made us laugh and love harder than we had ever done before. Every single day with Ronan was a blessing.
Our perfect family changed in August of
2010, during our annual trip to my parents' house in Washington State. It was a
trip that we had been taking since the birth of Liam and Quinn, and we always
took a family photo on this trip. Every year, we used this photo as our
Christmas card. That August, while the boys were posing in my parents'
cornfield, happy as can be, I noticed that Ronan's eye looked a little
"off" or "lazy." When I mentioned it to other family
members, they all said they hadn't noticed.
The following day, Liam, Quinn, Ronan and I
returned home to Phoenix, and Daddy greeted us. He noticed Ronan's eye almost
immediately. That's when I knew I should schedule an appointment with Ronan's
pediatrician.
Ronan's great pediatrician, Dr. Lindsey
Campbell, referred us to an ophthalmologist who dismissed my concerns and
intuition. She did not believe there was anything wrong with my baby. But I did.
Not long after our meeting started, I walked out of the appointment, and
frantically started calling other doctors who might be available to see Ronan
on short notice.
Dr. Brendan Cassidy agreed to see Ronan the
next day. At first glance at Ronan's eye, which was now bulging out of the
socket, Dr. Cassidy immediately knew something was seriously wrong. Dr. Cassidy
sent us directly to Phoenix Children's Hospital for an MRI. The MRI showed a
small mass above the left orbit of Ronan's eye. The following day, Ronan had a
CT scan done, and they found a mass in Ronan's abdomen.
It was on this day, the 12th day of August,
2010, that Ronan, my son, my baby, my love, was diagnosed with Stage IV
Neuroblastoma.
Ronan's orbital tumor was successfully
removed at Phoenix Children's Hospital on August 13, 2010, where he also
received 5 rounds cycles of chemo. The tumor in his abdomen was almost
completely removed by surgeons at Sloan-Kettering in New York City. Ronan
responded well to the first 5 rounds of chemo, and it was only after the MIBG
scan after Round 5, that we decided to forgo the standard COG protocol, the
standard treatment for neuroblastoma. We moved Ronan to Sloan Kettering to
continue treatment under the care of Dr. Kushner. We did this because Ronan's
scans were much improved, but he still had a lot of MIBG activity. We felt
Sloan Kettering was where we needed to be. Ronan underwent radiation and ICE at
Sloan. A few weeks later, Ronan's disease took a turn for the worse. His body
did not respond to the chemo, and his disease rapidly progressed. We returned
to Phoenix with heavy hearts, but refused to give up.
We took Ronan to meet with Dr. Mosse at
CHOP in Philadelphia. It was at CHOP that we were told that Ronan could not
undergo MIBG therapy. We were told to take Ronan home, and enjoy the rest of
the time we had with him.
We searched frantically for something,
anything else that would help our baby. We were told to contact Dr. Giselle
Sholler and she agreed to accept Ronan in her Nifurtimox trial. But Ronan's
little body gave out before we could get to San Diego for the treatment.
Ronan's battle with Neuroblastoma ended on
May 9, 2011, but his fight will go on. Ronan continues to inspire us in the way
he lived his life full of passion, strength, and courage. He will live forever
in our hearts and minds as the most beautiful little boy to ever have touched
the earth. We, as a family, are determined to carry on his name, and find a
cure for this horrible disease.
Maya Thompson.
If you wanna read more go on: http://www.theronanthompsonfoundation.com
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